The last few days have been frustrating (par for the course). Because Nathan had a reaction to some of his treatments, they discontinued lipids a while back. Unfortunately, the lipids are his only source of fats, so he hasn't been putting on any weight. They think they've isolated his reaction down to multivitamins in the original TPN, so they're going to try starting him on lipids again on Monday.
In the meantime, they got creative with replacements. One of the allergists came back with the idea of putting him on safflower oil. Not as a drip, but to be taken orally as well as topically. Yes, you read that right, they wanted to rub him down with safflower oil, expecting that some of it would absorb into his skin.
Uh...
Yeah, the idea was as stupid/bad/ridiculous as it sounds. I hate to beat up on the doctor since I know she meant well, but the whole thing borders on quackery. The oil they had Nathan swallow has made him sick for the last couple of days. He's been throwing up every hour, mostly saliva with a small amount of oil. On top of that, the oil on his skin made it even more difficult for the ostomy bag to adhere, as if we weren't having enough problems with it.
We're getting anxious with the theoretical goal of Nathan's departure from the hospital coming up next week. His surgeon has been on vacation for a week and was supposed to return on Thursday, but we haven't seen or heard from him. It just feels like everyone is disconnected. I know he's still getting great care, but it's very frustrating. Especially when we're supposedly so close to taking him home.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment