This whole experience has seemingly twisted the fabric of time and space. Nathan has been in the hospital for 2 months, but it feels like 10 years. We used to look forward to weekends with our little family. Now weekends just mean a lean hospital staff and long hours of enduring. Our boy is slowly getting better, but it's taking a heavy toll on the rest of us.
Like I said, he's doing well. Regardless, they've had a real problem with his ostomy bags. His stomas are arranged in such a way that small, child-sized bags won't fit, and adult bags are simply too large to adhere to his skin properly. Yesterday alone, I think they had to replace his bag four times. This is having a very bad effect, where either the adhesives pull his skin when the bags are removed, or the acidic bile eats away at his skin the rest of the time. Amazingly, he continues with high spirits. He's miserable when they're working on the bags, often times they have to hold him still. As a parent, it's very painful to watch.
We just want to come home. And yet, the ostomy bag problems loom large on the horizon. My reservoir of hope and patience is running low. I hope he's smiling when I visit tonight.
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2 comments:
Keep your chin up - in a few months this will all seem like a bad dream. Best of all, he'll vaguely remeber - if at all. We'll keep you all in our prayers.
The Grove family
Sending all of you a big hug, and please know that Nathan will be home soon and all of you will get some well deserved rest. What a little trooper he is, and you and Christa have been his strength through all of this, and Nathan knows this.
Thinking of all of you daily and my shoulder and heart are here for you to lean on.
Love to all,
Grandma Sherry
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